When people living with dementia need help with everyday functioning like bathing and dressing, most prefer to receive that care in their homes or in community settings. These “home- and community-based services” or HCBS, can include personal care, home health care, and care management services. They are delivered in locations like individuals’ homes, senior centers, adult daycare, and congregate meal sites. There are many gaps in access to, quality of, and costs of HCBS, especially for people with dementia. It is therefore challenging for HCBS researchers, providers, and policymakers to coordinate with each other since HCBS include so many types of services, entities that pay for them, and locations in which care is delivered.
What Is Our Goal?
The Community Care Network for Dementia seeks to
- foster knowledge sharing to advance innovative dementia HCBS research
- generate data tools on structure, process, and outcome measures of dementia HCBS
- grow and diversify the bench of dementia HCBS researchers
- facilitate translation of research into dementia HCBS policy changes
- develop the network infrastructure, products, and mentorship activities through a diversity, equity, and inclusion (DEI) lens.
What Are Our Network Activities?
- Quarterly network meetings
- Monthly working group meetings
- Annual intensive data workshops
- Research translation and dissemination training seminars
- Mentorship gatherings
- Dementia HCBS Data Hub